My Favourite Things
On 1st December it will be nine years since Jenny suddenly became ill. Last year, she put everything she had into this important blog post about her illness. This year, however, Jenny has decided to …
My Dream ~ by Ann Rowbory
[Written by Ann Rowbory, carer and mother of Jenny.] I have a dream that there will be a UK hospital for severely affected ME patients. These patients’ needs are many and different from other patients. …
M.E. Awareness Day 2013
Today is International M.E. Awareness Day 2013. Jenny is too ill to write anything this year but the following are links to the best pieces she has written about her illness. Please take the time …
28th March 2013: Update
In December, after concluding that a) We were never going to be able to raise enough money for an air ambulance to see the specialist US doctor that Jenny regards as the best M.E. doctor …
When it hasn’t been your day, your week, your month or even your 8 years
Eight years ago today, I suddenly became ill and my life changed forever. (My story and details of my illness are here but this post is not about that). To mark today, a special video …
In celebration of National Poetry Day 2012
Today is National Poetry Day. What is it that makes you love one poem and hate another? For me, the most special poems are the ones that do the following: The best moments in reading …
Lighting the beacons of Gondor
This post is us metaphorically lighting the beacons of Gondor, hoping someone somewhere will come to our aid. If anyone knows of a doctor in the UK who is knowledgable about (and treats) the complex …
Quick March Update
March 2012 Jenny was due to start a new medicine in January but quickly found out that it did not react well with one of the tablets that she was already on (Clonazepam, which she …
Sign the M.E e-petition!
~ This post is by Ian Rowbory (Jenny’s father): The M.E community are asking people to sign an e-petition which will release and make freely available all information which is currently embargoed relating to M.E …
‘The Science of M.E. (Myalgic Encephalomyelitis) and Medical Politics.’ Colchester Saturday 3rd December
‘The Science of M.E. (Myalgic Encephalomyelitis) and Medical Politics.’ I am Jenny’s Mum and I went to a talk given by Dr Ian Gibson on Saturday December 3rd 2011 in Lexden, Colchester, Essex, UK. Dr …