The World Cup and fundraising update!
Wherever you are in the world, I hope that you are enjoying the World Cup; I know that the people who receive these updates are an international crowd! Social media has been flooded with joyful …
News
40 days until I turn 40: we need just 400 people in order to reach my fundraising target for life-saving neurosurgery
It’s forty days until I turn forty! This is my big push to reach my fundraising target for my urgently-needed neurosurgery that is not available in the UK. We’ve thought of a way to break …
First update of 2026, new poems, and fundraising update
It’s a bit late, but Happy New Year! I have something exciting to share with you today. First though, apologies for the lack of updates; it’s been a hard and unpleasant year so far. I …
Orangetober
Happy October! Please join in with Orangetober this month: every time you see something orange, take a photo of it and post it online, along with a brief explanation. You can use your own …
A question raised in parliament about EDS patients with neck instabilities who have to crowdfund for treatment overseas because there’s no help available on the NHS
Today in Prime Minister’s Question Time, a Member of Parliament raised a question about one of his constituents who, like me, has neck instabilities caused by EDS and is also having to crowdfund for …
A Summer Night’s Dream of Poetry with Jenny Rowbory
Jenny invites you to join her for ‘A Summer Night’s Dream of Poetry’. She has made a beautiful 14 minute video of her performing her favourite poetry by other poets, and a final poem of …
Summer Reading Challenge
Summer Reading Challenge: try to read (or listen to via audiobook) as many books as possible over the summer and get friends/family to sponsor you per book that you manage to read, all in …
Thank you – we smashed it over the 48 hours!
A huge thank you to everyone – to those who donated and to those who spread the word about the matching donations over Jenny’s birthday. We are overflowing with gratitude and overwhelmed by the kindness …
Donations are going to be matched on 29th+30th April! Plus a message from Ann Rowbory
This is Ann Rowbory, Jenny’s mum and carer. Tomorrow, 29th April, is Jenny’s 39th birthday. A generous donor has offered to match donations on 29th April and also 30th April, up to the amount of …
A surprise poem and some good news
I have written a new poem called ‘Resurrection Song’, which I perform here on YouTube (the video is only 4½mins long and it is also illustrated!): I would love it if you were to share …