‘Steptember’ is our new fundraising push during the month of September. Hopefully it will be a STEP towards reaching the target amount needed for Jenny’s life-saving neurosurgeries. What is ‘Steptember’? During September, take a …
Wherever you are in the world, I hope that you are enjoying the World Cup; I know that the people who receive these updates are an international crowd! Social media has been flooded with joyful …
It’s forty days until I turn forty! This is my big push to reach my fundraising target for my urgently-needed neurosurgery that is not available in the UK. We’ve thought of a way to break …
It’s a bit late, but Happy New Year! I have something exciting to share with you today. First though, apologies for the lack of updates; it’s been a hard and unpleasant year so far. I …
Happy October! Please join in with Orangetober this month: every time you see something orange, take a photo of it and post it online, along with a brief explanation. You can use your own …
Today in Prime Minister’s Question Time, a Member of Parliament raised a question about one of his constituents who, like me, has neck instabilities caused by EDS and is also having to crowdfund for …
Jenny invites you to join her for ‘A Summer Night’s Dream of Poetry’. She has made a beautiful 14 minute video of her performing her favourite poetry by other poets, and a final poem of …
Summer Reading Challenge: try to read (or listen to via audiobook) as many books as possible over the summer and get friends/family to sponsor you per book that you manage to read, all in …
A huge thank you to everyone – to those who donated and to those who spread the word about the matching donations over Jenny’s birthday. We are overflowing with gratitude and overwhelmed by the kindness …
This is Ann Rowbory, Jenny’s mum and carer. Tomorrow, 29th April, is Jenny’s 39th birthday. A generous donor has offered to match donations on 29th April and also 30th April, up to the amount of …