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Choose a Challenge to help save Jenny’s life: #FaveToSave or #DenForJen

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#ChooseAChallenge to help fundraise for life-saving surgery for Jenny:

• #FaveToSave – Post a photo of yourself in your favourite outfit, the one that brings you the most joy (could be glam or cosy or fun or sporty or smart or a costume – whatever) in a pose that reflects the activity you’re doing […]

Catch Up with the #SaveJenny Evening of Entertainment

  If you want to catch up with the full evening of entertainment, you can watch it in its glorious entirety in the video above. Settle down for a two and a half hour viewing of delight. It’s a warm hug in a time where hugs are scarce.

HOWEVER, if time is not on […]

#SaveJenny: An evening of entertainment to raise funds to save Jenny’s life

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Join us live on YouTube at 6pm GMT, Sunday 29th November for an evening of fun: sketches, music, poems, games, stories and more! With a host of big names and stars.

It can be watched on YouTube here: https://youtu.be/ZmqlGUkm5XQ

It will be raising funds to #SaveJenny. All the details of what’s wrong with Jenny […]

My Audiobook Adventures

‪I have deteriorated further. My neck keeps subluxing and breaking away further in a particular direction and my skull rolls about independently on the pillow so I can’t ever keep it still or safe. It’s impossible to sleep with it moving around and bending the vertebrae close to snapping point. I’m rarely able to look […]

April 2020 Health Update and Other News (I’ve been quoted in the New Statesman!)

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As you would have gathered from the post-surgery update (you can read it here), I desperately need another operation to fix what happened in the last one and being fused into the wrong position without the correct amount of intraoperative traction. I’m fighting for my life every day.

It’s not only the stagnation […]

Post-surgery update on Jenny

We are in a state of shock and devastation.

Jenny immediately knew after the operation (an occipitocervical fusion and also a posterior fossa decompression) that something was very wrong but wasn’t able to communicate it for a while, especially while in the Critical Care Unit after the operation and having lost so much blood […]

Health Update October 2019

I have no wit, no words, no tears; My heart within me like a stone Is numb’d too much for hopes or fears; Look right, look left, I dwell alone ~ Christina Rossetti

 

My last health update at the end of my ‘Best and Worst of 2018’ blog post was over nine months […]

Best and Worst of 2018

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These are my best and worst books, films, television programmes, sport and videos of 2018 […]

Update on October’s hospital visit and current health

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  I was trying to wait until we had more definite information and a firm plan of action until I posted an update but so many of you have been asking how I am (thank you for caring!) that an update is needed.

In case you don’t follow my twitter or facebook feeds, […]

Update on Jenny’s hospital stay

Jenny is alive and back home!

She has physically deteriorated and is in a bad way from the long ambulance journeys and the noise of being in a hospital and having doctors and nurses constantly coming into her room in hospital, which was always going to make her worse. We knew that before we went […]