Sign the M.E e-petition!
~ This post is by Ian Rowbory (Jenny’s father): The M.E community are asking people to sign an e-petition which will release and make freely available all information which is currently embargoed relating to M.E …
‘The Science of M.E. (Myalgic Encephalomyelitis) and Medical Politics.’ Colchester Saturday 3rd December
‘The Science of M.E. (Myalgic Encephalomyelitis) and Medical Politics.’ I am Jenny’s Mum and I went to a talk given by Dr Ian Gibson on Saturday December 3rd 2011 in Lexden, Colchester, Essex, UK. Dr …
Voices from the Shadows- Norwich Friday 2nd of December
Voices from the Shadows About 100 people attended the showing of the documentary film ‘ Voices from the Shadows’ held at The Forum in Norwich on Friday 2nd December. This moving film told the …
Jenny is still alive
Jenny is still alive [this is the most positive statement that we can issue]. She is just battling to survive every day, putting all her energies in trying to get enough food down her throat …
An incredible interview
Whatever you think of the content, this is an incredible interview; it’s very compelling and relevant to everyone: http://think-left.org/2011/08/04/welfare-reform-and-mecfs/ Don’t be put off by the title. It covers everything from the phone hacking scandal, the …
Muddling through
Everyone is currently talking about Terry Pratchett’s programme on assisted dying. I didn’t get to watch it as it was scheduled too late for me (I have Lights Out very early because I’m so ill). …
Reviews
All the reviews of ‘Rainbows in my eyes’ Review & interview by Clare Dudman, award-winning British novelist: http://keeperofthesnails.blogspot.com/2010/01/sunday-salon-rainbows-in-my-eyes-by-jk.html Review by Wayne Jacobsen, author, speaker, publisher of ‘The Shack’: http://www.lifestream.org/content/rainbows-my-eyes Review by the Church Times: http://www.churchtimes.co.uk/content.asp?id=99038 …
Reflections on 12th May 2011
Jenny is extremely ill, as you all know. She has just about been able to convey to us a few thoughts for today, International M.E. Awareness Day, for us to type up. First of all, …
Why care about M.E.? || M.E. Awareness Week 2011
“Justice will not be served until those who are unaffected are as outraged as those who are.” ~ Benjamin Franklin I am bed-bound, unable to sit up and unable to talk. It is extremely difficult …
April 29th! Happy Birthday Jenny
Jenny is 25 today. Many thanks for all those who have contributed to the Dear Jenny Project and sent messages to her. She was presented with the messages in a presentation album this morning. If you would …