News

“Justice will not be served until those who are unaffected are as outraged as those who are.” ~ Benjamin Franklin I am bed-bound, unable to sit up and unable to talk. It is extremely difficult …

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Jenny is 25 today. Many thanks for all those who have contributed to the Dear Jenny Project and sent messages to her. She was presented with the messages in a presentation album  this morning. If you would …

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Jenny came out of hospital on Thursday 14th April.  She had originally  been admitted by her doctor as an emergency admission into the Acute  Medical Unit on 7th April. She has come out of hospital …

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The ‘Dear Jenny’ Project What is it?   We would like everyone who has ever known Jenny to write her a letter in which you recount your memories of her/what she meant to you/how she’s touched your life. …

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We thought you might like to look at this documentary from the link below. http://mecfs-mystory.blogspot.com/2010/11/i-remember-me-documentary-about-mecfs.html

A Bit Of December Fun Jenny has been writing one film down every day on her ipod for a month or so in order to be able to compose this post.  She enjoyed deciding what …

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1st December 2010 Today marks the day 6 years ago when I suddenly became ill. You all know the details already so I won’t repeat myself. I’ll leave you with this instead, which I found …

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Health Update Jenny’s health continues to deteriorate. As most of you know, she is bed-bound and unable to sit up. Symptoms of cardiac insufficiency are present at rest and discomfort is increased with any slight …

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