M.E. Awareness Day 2013
Today is International M.E. Awareness Day 2013. Jenny is too ill to write anything this year but the following are links to the best pieces she has written about her illness. Please take the time …
News
28th March 2013: Update
In December, after concluding that a) We were never going to be able to raise enough money for an air ambulance to see the specialist US doctor that Jenny regards as the best M.E. doctor …
When it hasn’t been your day, your week, your month or even your 8 years
Eight years ago today, I suddenly became ill and my life changed forever. (My story and details of my illness are here but this post is not about that). To mark today, a special video …
Lighting the beacons of Gondor
This post is us metaphorically lighting the beacons of Gondor, hoping someone somewhere will come to our aid. If anyone knows of a doctor in the UK who is knowledgable about (and treats) the complex …
Quick March Update
March 2012 Jenny was due to start a new medicine in January but quickly found out that it did not react well with one of the tablets that she was already on (Clonazepam, which she …
Sign the M.E e-petition!
~ This post is by Ian Rowbory (Jenny’s father): The M.E community are asking people to sign an e-petition which will release and make freely available all information which is currently embargoed relating to M.E …
‘The Science of M.E. (Myalgic Encephalomyelitis) and Medical Politics.’ Colchester Saturday 3rd December
‘The Science of M.E. (Myalgic Encephalomyelitis) and Medical Politics.’ I am Jenny’s Mum and I went to a talk given by Dr Ian Gibson on Saturday December 3rd 2011 in Lexden, Colchester, Essex, UK. Dr …
Voices from the Shadows- Norwich Friday 2nd of December
Voices from the Shadows About 100 people attended the showing of the documentary film ‘ Voices from the Shadows’ held at The Forum in Norwich on Friday 2nd December. This moving film told the …
Jenny is still alive
Jenny is still alive [this is the most positive statement that we can issue]. She is just battling to survive every day, putting all her energies in trying to get enough food down her throat …
An incredible interview
Whatever you think of the content, this is an incredible interview; it’s very compelling and relevant to everyone: http://think-left.org/2011/08/04/welfare-reform-and-mecfs/ Don’t be put off by the title. It covers everything from the phone hacking scandal, the …