Update on Jenny’s hospital stay
Jenny is alive and back home! She has physically deteriorated and is in a bad way from the long ambulance journeys and the noise of being in a hospital and having doctors and nurses constantly …
Illness
You (yes, you) need to read what I have to say about the plastic straw ban
Human beings need five things to survive: water, food, oxygen, sleep and also sufficient warmth so that they don’t get hypothermia. For many people with disabilities, the total removal of plastic straws would …
Let me tell you a bit about my parents…
[NB: This blog post was written in 2018] Let me tell you a bit about my parents. They have worked relentlessly hard to care for me so incredibly well for over 13 years …
The launch of my ‘Five by Five’ challenge and how I managed to do it
The past four months have been brutal. On top of all the ambulance journeys, as I explained in my previous blog post, I can now only lie horizontal with my head touching my pillow for …
A lot has happened
Last May, I injured my head. The whole of the right half of my head became numb and if any of the right half of my head was touching anything, including my pillow, then more …
Best and Worst of 2017: my year
2017 was devastating for me both physically and emotionally but the following films, television, articles (and more) helped keep me going and provided glimpses of light, interest and joy (even though, like everything, they were …
When you beckon lightning and invite it in for tea
By February 2007, I had been receiving daily Nexavir injections (an antiviral) for six months and I was actually starting to see small improvements in my health for the first time in over two years …
Confronting my own internalised ableism
Lots of people, including me, write of how active we were before our illness, of how many miles we ran or how much sport we played. It underlines that we are not the usual sort …