Quick March Update
March 2012 Jenny was due to start a new medicine in January but quickly found out that it did not react well with one of the tablets that she was already on (Clonazepam, which she …
Sign the M.E e-petition!
~ This post is by Ian Rowbory (Jenny’s father): The M.E community are asking people to sign an e-petition which will release and make freely available all information which is currently embargoed relating to M.E …
‘The Science of M.E. (Myalgic Encephalomyelitis) and Medical Politics.’ Colchester Saturday 3rd December
‘The Science of M.E. (Myalgic Encephalomyelitis) and Medical Politics.’ I am Jenny’s Mum and I went to a talk given by Dr Ian Gibson on Saturday December 3rd 2011 in Lexden, Colchester, Essex, UK. Dr …
Voices from the Shadows- Norwich Friday 2nd of December
Voices from the Shadows About 100 people attended the showing of the documentary film ‘ Voices from the Shadows’ held at The Forum in Norwich on Friday 2nd December. This moving film told the …
Jenny is still alive
Jenny is still alive [this is the most positive statement that we can issue]. She is just battling to survive every day, putting all her energies in trying to get enough food down her throat …
An incredible interview
Whatever you think of the content, this is an incredible interview; it’s very compelling and relevant to everyone: http://think-left.org/2011/08/04/welfare-reform-and-mecfs/ Don’t be put off by the title. It covers everything from the phone hacking scandal, the …
Muddling through
Everyone is currently talking about Terry Pratchett’s programme on assisted dying. I didn’t get to watch it as it was scheduled too late for me (I have Lights Out very early because I’m so ill). …
Reviews
All the reviews of ‘Rainbows in my eyes’ Review & interview by Clare Dudman, award-winning British novelist: http://keeperofthesnails.blogspot.com/2010/01/sunday-salon-rainbows-in-my-eyes-by-jk.html Review by Wayne Jacobsen, author, speaker, publisher of ‘The Shack’: http://www.lifestream.org/content/rainbows-my-eyes Review by the Church Times: http://www.churchtimes.co.uk/content.asp?id=99038 …
Reflections on 12th May 2011
Jenny is extremely ill, as you all know. She has just about been able to convey to us a few thoughts for today, International M.E. Awareness Day, for us to type up. First of all, …
Why care about M.E.? || M.E. Awareness Week 2011
“Justice will not be served until those who are unaffected are as outraged as those who are.” ~ Benjamin Franklin I am bed-bound, unable to sit up and unable to talk. It is extremely difficult …