My greatest wishes on my 29th birthday
Today I am 29 on the 29th! The only time in my life when the age I turn on my birthday is the same number as the date of the month on which my birthday …
Jenny Rowbory
’80 days’ review: not only have inkle studios managed to create my dream game but it is also accessible enough that even someone as ill as me can (slowly, gradually) play it
One time when my brothers and I were huddled around the Playstation playing Final Fantasy VII in the late 90s, I remember saying something to the effect of “I wish there was a game like …
Let Me Entertain You: 101 songs that instantly transport me back to the mid 90s to early 00s
I’m not really a music person. Growing up, I didn’t listen to the radio, I didn’t seek out new songs to listen to and I didn’t buy CDs like everyone else did (but that was …
My Favourite Things
On 1st December it will be nine years since Jenny suddenly became ill. Last year, she put everything she had into this important blog post about her illness. This year, however, Jenny has decided to …
My Dream ~ by Ann Rowbory
[Written by Ann Rowbory, carer and mother of Jenny.] I have a dream that there will be a UK hospital for severely affected ME patients. These patients’ needs are many and different from other patients. …
M.E. Awareness Day 2013
Today is International M.E. Awareness Day 2013. Jenny is too ill to write anything this year but the following are links to the best pieces she has written about her illness. Please take the time …
28th March 2013: Update
In December, after concluding that a) We were never going to be able to raise enough money for an air ambulance to see the specialist US doctor that Jenny regards as the best M.E. doctor …
When it hasn’t been your day, your week, your month or even your 8 years
Eight years ago today, I suddenly became ill and my life changed forever. (My story and details of my illness are here but this post is not about that). To mark today, a special video …
In celebration of National Poetry Day 2012
Today is National Poetry Day. What is it that makes you love one poem and hate another? For me, the most special poems are the ones that do the following: The best moments in reading …
Lighting the beacons of Gondor
This post is us metaphorically lighting the beacons of Gondor, hoping someone somewhere will come to our aid. If anyone knows of a doctor in the UK who is knowledgable about (and treats) the complex …