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	<title>News &#8211; Jenny Rowbory</title>
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	<title>News &#8211; Jenny Rowbory</title>
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	<item>
		<title>A raffle for October and a thank you for Steptember</title>
		<link>https://www.jkrowbory.co.uk/2026/10/october-raffle/</link>
		
		<dc:creator><![CDATA[Jenny Rowbory]]></dc:creator>
		<pubDate>Mon, 05 Oct 2026 14:29:19 +0000</pubDate>
				<category><![CDATA[Fundraising]]></category>
		<category><![CDATA[News]]></category>
		<guid isPermaLink="false">https://www.jkrowbory.co.uk/?p=3982</guid>

					<description><![CDATA[<p>We have three great prizes for you to win in a raffle that we are running to help raise funds for my life-saving neurosurgeries. You only have a week to enter the raffle though! The ... </p>
<p class="read-more-container"><a title="A raffle for October and a thank you for Steptember" class="read-more button" href="https://www.jkrowbory.co.uk/2026/10/october-raffle/#more-3982" aria-label="Read more about A raffle for October and a thank you for Steptember">Read more</a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/10/october-raffle/">A raffle for October and a thank you for Steptember</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
]]></description>
										<content:encoded><![CDATA[<p>We have three great prizes for you to win in a raffle that we are running to help raise funds for my life-saving neurosurgeries. You only have a week to enter the raffle though! The prizes are: </p>
<p>• 2 tickets to attend a talk by the superstar author Pierce Brown on his UK Tour on Wednesday 21st October 7:30pm at Conway Hall, London, in conversation with John Gwynne. Event details are here: <a href="https://www.waterstones.com/events/pierce-brown-in-conversation-with-john-gwynne-at-conway-hall-london/london-piccadilly" target="_blank" rel="noopener">https://www.waterstones.com/events/pierce-brown-in-conversation-with-john-gwynne-at-conway-hall-london/london-piccadilly</a></p>
<p>• A women’s Superdry aviator jacket, size 14</p>
<p>• Hasbro Battleship game</p>
<p>How to enter (U.K. entries only, I’m afraid): </p>
<p>1. Donate £5 to my fundraiser for my life-saving neurosurgery at <a href="https://gofundme.com/savejenny" target="_blank" rel="noopener">gofundme.com/savejenny</a> &#8211; this will enter your name into the draw one time. If you would like more entries into the raffle, you can donate £5 for each extra entry into the draw</p>
<p>2. Take a screenshot of your donation and send it to this email address, which shall be manned by my Mum, Ann: books@jkrowbory.co.uk<br />
Please include the name by which you would like to be known by, for when names are drawn out of a hat.</p>
<p>YOU NEED TO HAVE ENTERED BY 6pm GMT ON 12TH OCTOBER 2026. So you haven’t got long to enter! Names will be drawn out of a hat on 13th October 2026 and the winners will be notified.<br />
1st place will get first pick of which prize they would like.<br />
2nd place will get 2nd choice.<br />
3rd will get the last prize left. </p>
<p>Good luck!</p>
<p>Thank you so much to everyone who joined in with Steptember. It really seemed to capture people’s imaginations and it was wonderful to see so many people joining in, especially on Instagram. I have an Instagram Story highlights circle labelled ‘Steptember’ if you would like to view all the photos that people took. My instagram is here: <a href="https://www.instagram.com/jennyrowbory" target="_blank" rel="noopener">https://www.instagram.com/jennyrowbory</a><br />
A special thanks goes to Amy Scott Robinson who put in a stellar effort and did a whole photo series on the various stairs and steps of St Mary’s Church. Also, thank you to Laurence Tilley who contributed a trio of photos of steps in York. Thanks also to Char, Violet, Phil and Abi for their magnificent efforts too.</p>
<p>I have continued to post book reviews, as well as videos of my reactions to the new series of The Celebrity Traitors (I listen to it via audio description), and fundraising videos<br />
on TikTok: <a href="https://www.tiktok.com/@jennyrowbory" target="_blank" rel="noopener">https://www.tiktok.com/@jennyrowbory</a><br />
as well as on YouTube <a href="https://youtube.com/@jenny.rowbory" target="_blank" rel="noopener">https://youtube.com/@jenny.rowbory</a> and on Instagram, which automatically syncs up with my facebook. I always appreciate support on social media to help with the algorithm. I add a brief fundraising message to the end of each video. I make sure to tag relevant people in those posts, who could potentially help.</p>
<p>My Mum is continuing with her letter writing and emailing campaign to various companies, journalists, and other individuals who might be able to help.</p>
<p>I shall be posting the following slides on my Instagram, TikTok, Facebook etc., where you will be able to share my post about the raffle. Or you could just share the link to this blog post with friends/family who would be interested in the raffle.</p>
<p><a href="https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_A4CEB720-194A-4BA8-B0E9-C52D9643A8BC.jpeg"><img decoding="async" src="https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_A4CEB720-194A-4BA8-B0E9-C52D9643A8BC-213x300.jpeg" alt="" width="213" height="300" class="aligncenter size-medium wp-image-3983" srcset="https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_A4CEB720-194A-4BA8-B0E9-C52D9643A8BC-213x300.jpeg 213w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_A4CEB720-194A-4BA8-B0E9-C52D9643A8BC-726x1024.jpeg 726w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_A4CEB720-194A-4BA8-B0E9-C52D9643A8BC-768x1084.jpeg 768w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_A4CEB720-194A-4BA8-B0E9-C52D9643A8BC-1089x1536.jpeg 1089w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_A4CEB720-194A-4BA8-B0E9-C52D9643A8BC.jpeg 1134w" sizes="(max-width: 213px) 100vw, 213px" /></a></p>
<p><a href="https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_1F81B9B1-176E-4D62-B731-4A69A2602D32.jpeg"><img loading="lazy" decoding="async" src="https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_1F81B9B1-176E-4D62-B731-4A69A2602D32-213x300.jpeg" alt="" width="213" height="300" class="aligncenter size-medium wp-image-3984" srcset="https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_1F81B9B1-176E-4D62-B731-4A69A2602D32-213x300.jpeg 213w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_1F81B9B1-176E-4D62-B731-4A69A2602D32-726x1024.jpeg 726w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_1F81B9B1-176E-4D62-B731-4A69A2602D32-768x1084.jpeg 768w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_1F81B9B1-176E-4D62-B731-4A69A2602D32-1089x1536.jpeg 1089w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/10/collage_export_1F81B9B1-176E-4D62-B731-4A69A2602D32.jpeg 1134w" sizes="auto, (max-width: 213px) 100vw, 213px" /></a> </p>
<p>Here is the link to my video that explains what is wrong with my neck, what I have to do every day to stay alive, and why it is getting more urgent that I get this neurosurgery as soon as possible:<br />
<a href="https://youtu.be/4XbNiqMCMns" target="_blank" rel="noopener">https://youtu.be/4XbNiqMCMns</a></p>
<a href="https://www.jkrowbory.co.uk/2026/10/october-raffle/"><img decoding="async" src="https://www.jkrowbory.co.uk/wp-content/plugins/wp-youtube-lyte/lyteCache.php?origThumbUrl=%2F%2Fi.ytimg.com%2Fvi%2F4XbNiqMCMns%2Fmaxresdefault.jpg" alt="YouTube Video"></a><br /><br /></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/10/october-raffle/">A raffle for October and a thank you for Steptember</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
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		<title>Why noise is life-threatening for me</title>
		<link>https://www.jkrowbory.co.uk/2026/09/noise/</link>
		
		<dc:creator><![CDATA[Jenny Rowbory]]></dc:creator>
		<pubDate>Fri, 25 Sep 2026 18:19:52 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Awareness]]></category>
		<category><![CDATA[Illness]]></category>
		<guid isPermaLink="false">https://www.jkrowbory.co.uk/?p=3973</guid>

					<description><![CDATA[<p>Any noise — whether it be the running engine of a van/tractor/digger/generator/mixer/other heavy vehicle/machinery or whether it be other construction sounds e.g. hammering, putting up scaffolding, drilling, a pecker drill etc. — seriously harms me, ... </p>
<p class="read-more-container"><a title="Why noise is life-threatening for me" class="read-more button" href="https://www.jkrowbory.co.uk/2026/09/noise/#more-3973" aria-label="Read more about Why noise is life-threatening for me">Read more</a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/09/noise/">Why noise is life-threatening for me</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
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										<content:encoded><![CDATA[<p>Any noise — whether it be the running engine of a van/tractor/digger/generator/mixer/other heavy vehicle/machinery or whether it be other construction sounds e.g. hammering, putting up scaffolding, drilling, a pecker drill etc. — seriously harms me, tortures me and endangers my life, as explained below.</p>
<p>For medical reasons, noise is literally torture for me. It is not merely ‘uncomfortable’ or ‘hypersensitivity’, it is unbearable constant agony and also inflicts lasting damage. Due to the reduced blood flow to all my body (because of the vascular compression of blood vessels in my neck due to the CCI/AAI (spinal neck instabilities) due to genetically confirmed Ehlers-Danlos Syndrome), my mitochondria don’t produce the energy needed for my body to function, so even noise acts as a physical exertion on my failing systems. Sounds that usually would not be a problem for other people, are a disaster for me. The vibrations of noise also disrupt my heart rhythms. It pushes me into chronic heart failure. Noise also produces agonising unbearable spine pain, nerve pain and head pain. Compression of my brainstem, cranial settling, and inflammation of the spinal cord, mean that noise is agony. </p>
<p>Not knowing when you are going to be tortured is an additional trauma to the torture itself. Private developers/construction companies are unwilling to provide days and times when construction work will be taking place.</p>
<p>Due to my unusual medical situation and rigid medical schedule, while I fundraise for my urgently-needed neurosurgery that isn’t available in the U.K. (this terrible situation for patients like me has recently been brought up in Prime Minister’s Questions by the MP Josh Newbury), I have to run on a ~48-72 hour long day, instead of a 24 hour day, in order to do all the things medically that I need to stay alive; this means that I often need to sleep during the day. Construction noise, vehicle noise (engines running), machines and drilling noise etc., means that sleep is impossible during the day as a result. This leaves me with extreme sleep deprivation. Sleep deprivation is often used as a method of torture. Sleep deprivation also leads to my organs going into semi-failure, as well as leading to vomiting, fevers, and seizures. </p>
<p>For the reasons explained in this video <a href="https://youtu.be/4XbNiqMCMns" target="_blank" title="https://gofundme.com/savejenny" rel="noopener">https://youtu.be/4XbNiqMCMns</a>  I can’t eat or sleep whenever I like; I have to plan for it. In order to be able to swallow my liquidised food, I have to get enough blood back to regain sensation and feeling in my mouth and swallowing mechanism. To do this, I have to spend 19+ hours lying completely still, in a specific position, without blacking out (again, this is explained more clearly in the video), which then leaves it safe to swallow. If I’m too sleep deprived from not being able to sleep due to noise from the private developer (including running engines of vehicles), then I’m not able to last 19 hours without blacking out and I won’t be able to eat. Similarly, I need that 19 hours, completely still in a specific position without blacking out, to get enough blood back in my body to be able to feel enough of my neck in order to work for hours making micro-adjustments to my neck, gradually untangling it and pulling it out of its sunken position (again this is explained in a more clear way in the video) before finally getting to my “sleep time”. If I don’t do this, when it comes to my time for sleep, I wake up after a couple of minutes, numb and partially paralysed, unable to breathe, in a chokehold position where my neck has slid to. So if construction noise comes at the beginning of the time that I’m meant to start sleeping, after I’ve spent 48hours getting into a position where I can sleep safely, all that time will have been wasted and I won’t be able to sleep because of the noise. I’m already suffering from severe sleep deprivation as a result of the private developer’s noise. </p>
<p>That is why it is so essential that we are provided with a schedule of when the construction noise will be taking place, so that I don’t spend 48hours working hard to get my body into a safe place to sleep, only for that sleep time to be stolen from me by noise that stops me from sleeping. </p>
<p>Ideally, all construction work would be stopped with immediate effect. Everyone has the right to not be tortured under Article 3 of the Human Rights Act, which is the law. If nobody is willing to enforce the law, then at the very least, I need the reprieve of no noise on weekends and also I need a schedule of days and times when the work will be taking place, so that I can attempt to plan what I need to do to keep my body functioning, fitting around the times of the noise. It is not right that the developer is imposing his timetable, and that others have to fit their whole lives around his wishes. I need to be able to eat and sleep so, I need at least to know the times when he is going to turn up and inflict excruciating agony on me. </p>
<p>The new developer started work in December 2025 and is still ongoing at time of publishing (September 2026). This additional developer comes after Adra imposed their construction work torture on me for nine months and then straight afterwards there was a different private developer doing work on the terraced houses next to us. As a result of the damage that both of these construction projects did to me, I am now unable to swallow solid foods (I have liquidised foods now), my body has become progressively more numb (again, see the video for the reasons why), and the exhaustion often left my body in fevers, vomiting and tachycardia. It also meant that I was not able to do any fundraising during that time for my urgently-needed neurosurgery because the noise made me so ill. The money that I would have raised in that time was stolen from me. We came to this village specifically for the quiet, which now seems like a cruel joke. </p>
<p>This new developer has already stolen Christmas and my 40th birthday, which I spent in agony because of him, and they have already done untold damage to my body. I will also be too incapacitated by the noise to be able to fundraise again. I desperately need the neurosurgery. The private developer should help me reach my target for the fundraising, since he is causing loss of incoming funds.</p>
<p>I don’t know how much extra damage to my body that this new construction work from this private developer will cause, but it’s not a question of ‘if’; there has already been damage and there will definitely be more damage.</p>
<p>Not knowing when a torturer is going to turn up from day-to-day is a terrorising experience.</p>
<p>Unfortunately, as with Adra, I can’t be moved away from the noise because unfortunately it is too dangerous and life-threatening to move me. I cannot be moved, neurosurgeons have confirmed, apart from to get the surgery. When I finally raise the money for the neurosurgery, I’ll be able to be moved via Medevac air ambulance, because there will be an operation at the end of the journey to fix any damage done to my neck during the journey.</p>
<p>I also cannot wear ear defenders due to the damage to my neck, as well as blood flow being further reduced by them and also physically being unable to wear them due to lying flat horizontally against a pillow. I am bed-bound and unable to lift or move or turn my head and neck from my pillow, and it is life-threatening to do so. I’m awaiting neurosurgery in the US (not available in the UK) while I fundraise to pay for it (see <a href="https://gofundme.com/savejenny" target="_blank" rel="noopener">https://gofundme.com/savejenny</a> ).</p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/09/noise/">Why noise is life-threatening for me</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
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		<title>Announcing ‘Steptember’ as our fundraising push for September, plus a thankful update</title>
		<link>https://www.jkrowbory.co.uk/2026/08/steptember/</link>
		
		<dc:creator><![CDATA[Jenny Rowbory]]></dc:creator>
		<pubDate>Mon, 31 Aug 2026 16:51:56 +0000</pubDate>
				<category><![CDATA[Fundraising]]></category>
		<category><![CDATA[News]]></category>
		<guid isPermaLink="false">https://www.jkrowbory.co.uk/?p=3964</guid>

					<description><![CDATA[<p>&#160; ‘Steptember’ is our new fundraising push during the month of September. Hopefully it will be a STEP towards reaching the target amount needed for Jenny’s life-saving neurosurgeries. What is ‘Steptember’? During September, take a ... </p>
<p class="read-more-container"><a title="Announcing ‘Steptember’ as our fundraising push for September, plus a thankful update" class="read-more button" href="https://www.jkrowbory.co.uk/2026/08/steptember/#more-3964" aria-label="Read more about Announcing ‘Steptember’ as our fundraising push for September, plus a thankful update">Read more</a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/08/steptember/">Announcing ‘Steptember’ as our fundraising push for September, plus a thankful update</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
]]></description>
										<content:encoded><![CDATA[<p><a href="https://www.jkrowbory.co.uk/wp-content/uploads/2026/08/collage_export_6AFB17F7-76A9-4568-81BB-B70E6EAF7DF8.jpeg"><img loading="lazy" decoding="async" src="https://www.jkrowbory.co.uk/wp-content/uploads/2026/08/collage_export_6AFB17F7-76A9-4568-81BB-B70E6EAF7DF8-300x200.jpeg" alt="" width="300" height="200" class="aligncenter size-medium wp-image-3967" srcset="https://www.jkrowbory.co.uk/wp-content/uploads/2026/08/collage_export_6AFB17F7-76A9-4568-81BB-B70E6EAF7DF8-300x200.jpeg 300w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/08/collage_export_6AFB17F7-76A9-4568-81BB-B70E6EAF7DF8-1024x683.jpeg 1024w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/08/collage_export_6AFB17F7-76A9-4568-81BB-B70E6EAF7DF8-768x512.jpeg 768w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/08/collage_export_6AFB17F7-76A9-4568-81BB-B70E6EAF7DF8-1536x1024.jpeg 1536w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/08/collage_export_6AFB17F7-76A9-4568-81BB-B70E6EAF7DF8.jpeg 1600w" sizes="auto, (max-width: 300px) 100vw, 300px" /></a><br />
&nbsp;</p>
<p>‘Steptember’ is our new fundraising push during the month of September. Hopefully it will be a STEP towards reaching the target amount needed for Jenny’s life-saving neurosurgeries. What is ‘Steptember’? During September, take a photo of steps and post the photo online, along with this brief message (you can use your own words or you can copy and paste the following to put with your photo):</p>
<blockquote><p>I am taking part in ‘Steptember’. In September, I am posting a photo of steps. This is to represent ascending steps towards the fundraising target to get Jenny Rowbory life-saving neurosurgeries that aren’t available in the U.K. for complex EDS patients like her. Please consider donating towards that goal here <a href="https://gofundme.com/savejenny" target="_blank" rel="noopener">https://gofundme.com/savejenny</a> You can watch a video about the situation with Jenny’s neck, why she needs to raise money urgently, and what she’s having to do every day to stay alive here: <a href="https://youtu.be/4XbNiqMCMns" target="_blank" rel="noopener">https://youtu.be/4XbNiqMCMns</a><br />
I invite everyone to join in with Steptember. Post your own photo or video of steps along with a message explaining why and what you’re raising money for.</p></blockquote>
<p>(NB &#8211; please remember to be safe with the photo that you share online, ensuring that nobody would be able to identify where you live from the photo. For example, do not post steps outside your front door)</p>
<p>Thank you! We are so grateful for your continuing support. A large donation in August inspired others online to help. On Instagram, a very kind person called @nooks_hooks in Belgium rallied the crochet community with a very generous giveaway on Jenny’s behalf, and donations came flooding in. Thank you to her and to everyone who has donated. It is much appreciated. Every donation brings so much hope and brings us a STEP closer to the target. It would be wonderful if you could participate in ‘Steptember’, especially as things are getting increasingly tough for Jenny the longer that she goes without the surgery. Invite your friends to do it too! Thanks again. </p>
<p>Jenny often gets messages and questions across various social media and she apologises that often she is too ill to respond to any questions. She tends to receive the same questions over and over again; she has made several videos answering those questions and has often pushed herself too hard to reply in comments to those questions, even when it’s repetitive. But people still ask the same questions because they do not realise that Jenny has answered them already, many times over. We realise that these questions are very well intentioned and are just trying to help, or are curious, but please remember that Jenny is extremely ill. She is only physically able to speak for a few minutes once every few days. She uses those minutes to batch record videos for social media. Jenny has been pushing herself far too hard to fundraise by posting a lot of videos on social media (mainly Instagram, TikTok and YouTube). After expending such a huge amount of strength, more than she should be doing (because she is so desperate for the surgery), she has nothing left to answer messages. It is hard for her to pick up her phone at all. She also has no time. As she deteriorates, her days have extended to 74-hour long days, just in order to medically do all the things that she needs to do to keep her body functioning. She lives permanently within an emergency medical situation, and just surviving each day takes everything that she has. I know that it’s hard to comprehend how severely ill she is, so when she’s not able to reply, please know that she’s not being rude. She’s doing more than she should already. She already has to put herself out there on social media more than she would like, because obviously she needs visibility in order to raise the money to save her life. I know that many people are curious about her life, but it is good and right that she sets boundaries now. So from now on, she will be leaving questions unanswered if she has answered the question many times before, or if she doesn’t feel comfortable sharing that information. She has shared more than enough and it is very tough on her. Thank you for your understanding and compassion.</p>
<p>Thank you so much for your continued support and generosity. Times are very hard financially for everyone; even if you are unable to donate, participating in ‘Steptember’ and sharing Jenny’s story online helps a lot too. Although Jenny has been on the local BBC News, we are continuing to look for a responsible and ethical journalist who could take her story to the national level.</p>
<p>Thank you so much.</p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/08/steptember/">Announcing ‘Steptember’ as our fundraising push for September, plus a thankful update</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
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		<title>The World Cup and fundraising update!</title>
		<link>https://www.jkrowbory.co.uk/2026/06/the-world-cup-and-fundraising-update/</link>
		
		<dc:creator><![CDATA[Jenny Rowbory]]></dc:creator>
		<pubDate>Thu, 18 Jun 2026 15:57:44 +0000</pubDate>
				<category><![CDATA[News]]></category>
		<category><![CDATA[Sport]]></category>
		<guid isPermaLink="false">https://www.jkrowbory.co.uk/?p=3958</guid>

					<description><![CDATA[<p>Wherever you are in the world, I hope that you are enjoying the World Cup; I know that the people who receive these updates are an international crowd! Social media has been flooded with joyful ... </p>
<p class="read-more-container"><a title="The World Cup and fundraising update!" class="read-more button" href="https://www.jkrowbory.co.uk/2026/06/the-world-cup-and-fundraising-update/#more-3958" aria-label="Read more about The World Cup and fundraising update!">Read more</a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/06/the-world-cup-and-fundraising-update/">The World Cup and fundraising update!</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
]]></description>
										<content:encoded><![CDATA[<p>Wherever you are in the world, I hope that you are enjoying the World Cup; I know that the people who receive these updates are an international crowd! Social media has been flooded with joyful videos of all nationalities interacting with each other because of the World Cup. Football has always had a way of bringing people together and making us realise that we are all the same, all human beings. It’s been bringing hope amid some dark times in the world.</p>
<p>I’ve made two brief videos (both of them are under 3 minutes), of my highlights of the World Cup so far, at these early stages of the competition. For those of us in Europe, many matches are in the middle of the night due to the time difference, so I’ve made these videos for people to catch up on all the best bits and interesting little tidbits that have happened so far. I listen to the games on BBC Radio 5 Live (I’m not able to watch them on TV/devices because of my neck). Due to the ~48-76 hour medical schedule that I have to stick to, in order to keep myself alive, and to keep my body functioning (until I raise enough money for the surgeries), the timings of the games in the USA actually work out pretty well for me, since I’m not running on a 24 hour day. Here are the videos:</p>
<p>Part 1 (my highlights of the first 5 games that I listened to):<br />
<a href="https://youtube.com/shorts/3JJvgd6gxc4" target="_blank" rel="noopener">https://youtube.com/shorts/3JJvgd6gxc4</a></p>
<p>Part 2 (my highlights of the second 5 games that I listened to):<br />
<a href="https://youtube.com/shorts/vHDcXP4YsRo" target="_blank" rel="noopener">https://youtube.com/shorts/vHDcXP4YsRo</a></p>
<p>These videos were both made before the first England game happened! I’ve posted these videos on YouTube, Instagram, TikTok and Facebook. They include a message at the end that says ‘if you enjoyed this video, please consider donating to my life-saving neurosurgeries at <a href="https://gofundme.com/savejenny" target="_blank" rel="noopener">https://gofundme.com/savejenny</a>’ so hopefully these videos will raise some money too.</p>
<p>If you would like to hold a fundraising event or do a fundraising challenge to raise some money towards my surgeries, I would be very grateful. Thank you for all your kind and generous support so far.</p>
<p>Although my story has been on the local BBC news, in the local papers and radio, what we really need is a responsible journalist to help my story reach a national (or international!) level. My Mum has written to hundreds of journalists, organisations, public figures, and politicians, over these last six years, but we usually do not get a response. There is a Cannock politician, MP Josh Newbury, who has a constituent in a similar position to me, who has raised a question in parliament about the appalling situation that people like me face, where there is no help available in this country. Any change in response to that will take decades however, which will be too late for me. So we still need to raise the money. </p>
<p>Wouldn’t it be amazing if a footballer or pundit were to hear about my story and spread the word during the World Cup, to get me to the USA for these surgeries!</p>
<p>As a reminder, here is the link to my video that explains what is wrong with my neck, what I have to do every day to stay alive, and why it is getting more urgent that I get this neurosurgery as soon as possible:<br />
<a href="https://youtu.be/4XbNiqMCMns" target="_blank" rel="noopener">https://youtu.be/4XbNiqMCMns</a></p>
<a href="https://www.jkrowbory.co.uk/2026/06/the-world-cup-and-fundraising-update/"><img decoding="async" src="https://www.jkrowbory.co.uk/wp-content/plugins/wp-youtube-lyte/lyteCache.php?origThumbUrl=%2F%2Fi.ytimg.com%2Fvi%2F4XbNiqMCMns%2Fmaxresdefault.jpg" alt="YouTube Video"></a><br /><br /></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/06/the-world-cup-and-fundraising-update/">The World Cup and fundraising update!</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
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		<title>40 days until I turn 40: we need just 400 people in order to reach my fundraising target for life-saving neurosurgery</title>
		<link>https://www.jkrowbory.co.uk/2026/03/40-days-until-i-turn-40/</link>
					<comments>https://www.jkrowbory.co.uk/2026/03/40-days-until-i-turn-40/#comments</comments>
		
		<dc:creator><![CDATA[Jenny Rowbory]]></dc:creator>
		<pubDate>Thu, 19 Mar 2026 17:55:41 +0000</pubDate>
				<category><![CDATA[Fundraising]]></category>
		<category><![CDATA[News]]></category>
		<guid isPermaLink="false">https://www.jkrowbory.co.uk/?p=3935</guid>

					<description><![CDATA[<p>It&#8217;s forty days until I turn forty! This is my big push to reach my fundraising target for my urgently-needed neurosurgery that is not available in the UK. We&#8217;ve thought of a way to break ... </p>
<p class="read-more-container"><a title="40 days until I turn 40: we need just 400 people in order to reach my fundraising target for life-saving neurosurgery" class="read-more button" href="https://www.jkrowbory.co.uk/2026/03/40-days-until-i-turn-40/#more-3935" aria-label="Read more about 40 days until I turn 40: we need just 400 people in order to reach my fundraising target for life-saving neurosurgery">Read more</a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/03/40-days-until-i-turn-40/">40 days until I turn 40: we need just 400 people in order to reach my fundraising target for life-saving neurosurgery</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
]]></description>
										<content:encoded><![CDATA[<p>It&#8217;s forty days until I turn forty! This is my big push to reach my fundraising target for my urgently-needed neurosurgery that is not available in the UK.</p>
<p>We&#8217;ve thought of a way to break it down and make the target achievable. We just need 400 people, 400 of you who are reading this, to try to raise £1000 each in the next 40 days before I turn 40 on the 29th April.</p>
<p>Whether you do that through a bake sale, a pub quiz, a walk, a run, a cycle, a swim, a sail, a danceathon, a coffee morning, a mini golf tournament, a raffle, a knitathon, hosting a meal and charging per head, a concert, a talent show, or a fundraiser of your own choosing, is up to you. Or you could do a combination of these.</p>
<p>So that we know how many of you are doing this, please leave your name in a comment on this blog post, if you are going to be attempting to raise £1000.</p>
<p>My fundraising page is <a href="https://gofundme.com/savejenny" target="_blank" rel="noopener">https://gofundme.com/savejenny</a></p>
<p>If you would rather donate via cheque (this would also avoid GoFundMe taking out any fees from your donation), please make your cheque payable to:<br />
J K ROWBORY<br />
(please make sure that you spell the surname correctly; it’s an unusual spelling)<br />
and send it to the following P.O. Box address (this P.O. Box will only be available for a couple of months):</p>
<p>Jenny&#8217;s Neurosurgery Fund<br />
PO Box Number 109,<br />
MACHYNLLETH<br />
SY20 0AS</p>
<p>If you would like an acknowledgement of the safe arrival of a postal donation, please enclose an address to which my Mum can send a reply. We will add the amount donated by your cheque as an ‘offline donation’ to the online fundraising page, to add to the total. Please let us know if you would like your postal donation to be anonymous or please state the name under which you would like it publicly displayed on the fundraising page.</p>
<p>If you need a video to show or explain to people what you are raising money for, you can share this video with them, which explains what is wrong with my neck, what I have to do every day to stay alive, and why it is getting more urgent that I get this neurosurgery as soon as possible:<br />
<a href="https://youtu.be/4XbNiqMCMns" target="_blank" rel="noopener">https://youtu.be/4XbNiqMCMns</a>:</p>
<a href="https://www.jkrowbory.co.uk/2026/03/40-days-until-i-turn-40/"><img decoding="async" src="https://www.jkrowbory.co.uk/wp-content/plugins/wp-youtube-lyte/lyteCache.php?origThumbUrl=%2F%2Fi.ytimg.com%2Fvi%2F4XbNiqMCMns%2Fmaxresdefault.jpg" alt="YouTube Video"></a><br /><br /></p>
<p>That video will answer every question that you have. It&#8217;s also the first pinned video on my profile on Instagram (here: <a href="https://www.instagram.com/jennyrowbory" target="_blank" rel="noopener">https://www.instagram.com/jennyrowbory</a>), TikTok (here: <a href="https://www.tiktok.com/@jennyrowbory" target="_blank" rel="noopener">https://www.tiktok.com/@jennyrowbory</a>) and Facebook (here: <a href="https://www.facebook.com/JennyRowbory" target="_blank" rel="noopener">https://www.facebook.com/JennyRowbory</a>) so you can share the video from there, if need be.</p>
<p>We can do this together! It’s very achievable if just 400 people try to raise £1000.</p>
<p>Thank you so very much.</p>
<p>Feel free to use this photo of me at your fundraising endeavours:</p>
<p><a href="https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/collage_export_B2FFE09A-413F-402A-A378-876AA64C3DDC.jpeg"><img loading="lazy" decoding="async" class="aligncenter size-medium wp-image-3936" src="https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/collage_export_B2FFE09A-413F-402A-A378-876AA64C3DDC-300x200.jpeg" alt="" width="300" height="200" srcset="https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/collage_export_B2FFE09A-413F-402A-A378-876AA64C3DDC-300x200.jpeg 300w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/collage_export_B2FFE09A-413F-402A-A378-876AA64C3DDC-1024x683.jpeg 1024w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/collage_export_B2FFE09A-413F-402A-A378-876AA64C3DDC-768x512.jpeg 768w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/collage_export_B2FFE09A-413F-402A-A378-876AA64C3DDC-1536x1024.jpeg 1536w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/collage_export_B2FFE09A-413F-402A-A378-876AA64C3DDC.jpeg 1600w" sizes="auto, (max-width: 300px) 100vw, 300px" /></a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/03/40-days-until-i-turn-40/">40 days until I turn 40: we need just 400 people in order to reach my fundraising target for life-saving neurosurgery</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
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		<title>First update of 2026, new poems, and fundraising update</title>
		<link>https://www.jkrowbory.co.uk/2026/03/first-update-of-2026-new-poems-and-fundraising-update/</link>
		
		<dc:creator><![CDATA[Jenny Rowbory]]></dc:creator>
		<pubDate>Sun, 01 Mar 2026 16:44:05 +0000</pubDate>
				<category><![CDATA[Fundraising]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Poetry]]></category>
		<guid isPermaLink="false">https://www.jkrowbory.co.uk/?p=3927</guid>

					<description><![CDATA[<p>It’s a bit late, but Happy New Year! I have something exciting to share with you today. First though, apologies for the lack of updates; it’s been a hard and unpleasant year so far. I ... </p>
<p class="read-more-container"><a title="First update of 2026, new poems, and fundraising update" class="read-more button" href="https://www.jkrowbory.co.uk/2026/03/first-update-of-2026-new-poems-and-fundraising-update/#more-3927" aria-label="Read more about First update of 2026, new poems, and fundraising update">Read more</a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/03/first-update-of-2026-new-poems-and-fundraising-update/">First update of 2026, new poems, and fundraising update</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
]]></description>
										<content:encoded><![CDATA[<a href="https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/IMG_6337.jpeg"><img loading="lazy" decoding="async" src="https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/IMG_6337-300x200.jpeg" alt="" width="300" height="200" class="size-medium wp-image-3930" srcset="https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/IMG_6337-300x200.jpeg 300w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/IMG_6337-1024x682.jpeg 1024w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/IMG_6337-768x511.jpeg 768w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/IMG_6337-1536x1022.jpeg 1536w, https://www.jkrowbory.co.uk/wp-content/uploads/2026/03/IMG_6337.jpeg 1600w" sizes="auto, (max-width: 300px) 100vw, 300px" /></a>
<p>It’s a bit late, but Happy New Year! I have something exciting to share with you today. First though, apologies for the lack of updates; it’s been a hard and unpleasant year so far. I have been plugging away with fundraising through videos on social media, mainly YouTube (this is my channel: <a href="https://youtube.com/@jenny.rowbory" target="_blank" rel="noopener">https://youtube.com/@jenny.rowbory</a> ) and TikTok (here: <a href="https://www.tiktok.com/@jennyrowbory" target="_blank" rel="noopener">https://www.tiktok.com/@jennyrowbory</a> ) and Instagram (here: <a href="https://www.instagram.com/jennyrowbory" target="_blank" rel="noopener">https://www.instagram.com/jennyrowbory</a> ), where it is an uphill struggle to try and build a platform and community, so I’d appreciate any follows and engagement on those accounts to help with the algorithms, and therefore with fundraising! I mainly talk about books, films and TV on those accounts and I usually end each video with a fundraising message.</p>
<p>There is a bigger fundraising plan in the works coming later this month since I am turning 40 years old at the end of April and I’m desperate to reach the target fundraising amount by then. So we’re going to have a big push before then (the idea is tied in with the number 40!) and we’ll let you know more about the plan soon.</p>
<p>For today though, I have a new video of a duo of original poems by me, collectively called ‘Suite of the Moon and Sun’. It is here on YouTube:<br />
<a href="https://www.jkrowbory.co.uk/2026/03/first-update-of-2026-new-poems-and-fundraising-update/"><img decoding="async" src="https://www.jkrowbory.co.uk/wp-content/plugins/wp-youtube-lyte/lyteCache.php?origThumbUrl=%2F%2Fi.ytimg.com%2Fvi%2FUqUqdZqogWQ%2Fmaxresdefault.jpg" alt="YouTube Video"></a><br /><br /></p>
<p>Individually the poems are called ‘When Winchester Cathedral swallowed the moon’ and ‘When Winchester Cathedral swallowed the sun’. I hope that you find them meaningful, helpful and thought-provoking. They were inspired by when the artist Luke Jerram’s travelling artworks ‘Museum of the Moon’ and ‘Helios’ were installed for a while in Winchester Cathedral. My aunt, Viv Ferris, who volunteers as a guide at the cathedral, sent me a photo of ‘Museum of the Moon’, which was the instigation of my inspiration for these poems. I hope that you enjoy them, and in this world of short-form content and short attention spans, I hope that you can find a few minutes to listen to them. I will share the video of the poems on most social media, so you can share or repost the video on whatever social media platform that you are on.</p>
<p>Thank you so much for your continued support and I am so grateful for all the donations. It doesn’t go without notice that there are many people who regularly donate; thank you so much for your generosity. You keep hope alive.</p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2026/03/first-update-of-2026-new-poems-and-fundraising-update/">First update of 2026, new poems, and fundraising update</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
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		<title>Orangetober</title>
		<link>https://www.jkrowbory.co.uk/2025/10/orangetober/</link>
		
		<dc:creator><![CDATA[Jenny Rowbory]]></dc:creator>
		<pubDate>Wed, 01 Oct 2025 07:54:44 +0000</pubDate>
				<category><![CDATA[Fundraising]]></category>
		<category><![CDATA[News]]></category>
		<guid isPermaLink="false">https://www.jkrowbory.co.uk/?p=3923</guid>

					<description><![CDATA[<p>&#160; Happy October! Please join in with Orangetober this month: every time you see something orange, take a photo of it and post it online, along with a brief explanation. You can use your own ... </p>
<p class="read-more-container"><a title="Orangetober" class="read-more button" href="https://www.jkrowbory.co.uk/2025/10/orangetober/#more-3923" aria-label="Read more about Orangetober">Read more</a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2025/10/orangetober/">Orangetober</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
]]></description>
										<content:encoded><![CDATA[<p><a href="https://www.jkrowbory.co.uk/wp-content/uploads/2025/10/38D9643B-D90F-48FF-8189-1BE168BD9C32.jpeg"><img loading="lazy" decoding="async" src="https://www.jkrowbory.co.uk/wp-content/uploads/2025/10/38D9643B-D90F-48FF-8189-1BE168BD9C32-300x200.jpeg" alt="" width="300" height="200" class="aligncenter size-medium wp-image-3924" srcset="https://www.jkrowbory.co.uk/wp-content/uploads/2025/10/38D9643B-D90F-48FF-8189-1BE168BD9C32-300x200.jpeg 300w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/10/38D9643B-D90F-48FF-8189-1BE168BD9C32-1024x683.jpeg 1024w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/10/38D9643B-D90F-48FF-8189-1BE168BD9C32-768x512.jpeg 768w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/10/38D9643B-D90F-48FF-8189-1BE168BD9C32-1536x1024.jpeg 1536w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/10/38D9643B-D90F-48FF-8189-1BE168BD9C32.jpeg 1600w" sizes="auto, (max-width: 300px) 100vw, 300px" /></a></p>
<p>&nbsp;<br />
Happy October! Please join in with Orangetober this month: every time you see something orange, take a photo of it and post it online, along with a brief explanation. You can use your own words or you can copy and paste the following to put with each of your photos:</p>
<p>I’m taking part in Orangetober. Whenever I see something orange this October, I’m taking a photo of it, and asking you to consider donating to Jenny Rowbory’s lifesaving neurosurgeries <a href="https://gofundme.com/savejenny" target="_blank" rel="noopener">https://gofundme.com/savejenny</a> You can watch a video about the situation with her neck, why she needs to raise money urgently, and what she’s having to do every day to stay alive here: <a href="https://youtu.be/4XbNiqMCMns" target="_blank" rel="noopener">https://youtu.be/4XbNiqMCMns</a></p>
<p>Thank you! We are so grateful for your continuing support, especially as things are getting increasingly tough. We hope that you have fun spotting the colour orange in your everyday lives this October! It will bring us so much hope if you join in with the challenge. Invite your friends to do it too! Thanks again. 🧡🧡🧡</p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2025/10/orangetober/">Orangetober</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
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		<title>A question raised in parliament about EDS patients with neck instabilities who have to crowdfund for treatment overseas because there’s no help available on the NHS</title>
		<link>https://www.jkrowbory.co.uk/2025/09/a-question-raised-in-parliament-about-eds-patients-with-neck-instabilities-who-have-to-crowdfund-for-treatment-overseas-because-theres-no-help-available-on-the-nhs/</link>
		
		<dc:creator><![CDATA[Jenny Rowbory]]></dc:creator>
		<pubDate>Wed, 10 Sep 2025 16:04:03 +0000</pubDate>
				<category><![CDATA[Fundraising]]></category>
		<category><![CDATA[Illness]]></category>
		<category><![CDATA[News]]></category>
		<guid isPermaLink="false">https://www.jkrowbory.co.uk/?p=3912</guid>

					<description><![CDATA[<p>&#160; Today in Prime Minister’s Question Time, a Member of Parliament raised a question about one of his constituents who, like me, has neck instabilities caused by EDS and is also having to crowdfund for ... </p>
<p class="read-more-container"><a title="A question raised in parliament about EDS patients with neck instabilities who have to crowdfund for treatment overseas because there’s no help available on the NHS" class="read-more button" href="https://www.jkrowbory.co.uk/2025/09/a-question-raised-in-parliament-about-eds-patients-with-neck-instabilities-who-have-to-crowdfund-for-treatment-overseas-because-theres-no-help-available-on-the-nhs/#more-3912" aria-label="Read more about A question raised in parliament about EDS patients with neck instabilities who have to crowdfund for treatment overseas because there’s no help available on the NHS">Read more</a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2025/09/a-question-raised-in-parliament-about-eds-patients-with-neck-instabilities-who-have-to-crowdfund-for-treatment-overseas-because-theres-no-help-available-on-the-nhs/">A question raised in parliament about EDS patients with neck instabilities who have to crowdfund for treatment overseas because there’s no help available on the NHS</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
]]></description>
										<content:encoded><![CDATA[<p><a href="https://www.jkrowbory.co.uk/wp-content/uploads/2025/09/IMG_3281.jpeg"><img loading="lazy" decoding="async" src="https://www.jkrowbory.co.uk/wp-content/uploads/2025/09/IMG_3281-300x200.jpeg" alt="" width="300" height="200" class="aligncenter size-medium wp-image-3913" srcset="https://www.jkrowbory.co.uk/wp-content/uploads/2025/09/IMG_3281-300x200.jpeg 300w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/09/IMG_3281-1024x683.jpeg 1024w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/09/IMG_3281-768x512.jpeg 768w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/09/IMG_3281-1536x1024.jpeg 1536w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/09/IMG_3281.jpeg 1600w" sizes="auto, (max-width: 300px) 100vw, 300px" /></a></p>
<p>&nbsp;<br />
Today in Prime Minister’s Question Time, a Member of Parliament raised a question about one of his constituents who, like me, has neck instabilities caused by EDS and is also having to crowdfund for treatment overseas because there is nothing available on the NHS for us. There are thousands of people in the same boat. Just hearing this question raised in parliament was incredible. I’ve been consistently ignored by my own MP so it was refreshing to see this.</p>
<p>Mum has immediately sent off an email to the MP that asked the question to tell him about me and to ask him to keep us up-to-date on any developments or if the government are going to set anything in motion or if he can help in any way.</p>
<p>It would take years to train up neurosurgeons in this country and get the specialist equipment into our hospitals in the UK (there’s no hospital in the UK with the equipment needed to determine the amount of intraoperative traction needed for complex EDS patients). So it’s unlikely that this will help my situation personally but it’s great that the process has potentially been started for people like me in the future. I’m guessing that the government are not going to financially contribute to individuals currently fundraising because there are so many people who need these operations overseas. It’s unlikely. Given that there’s no help available to us on the NHS, I wish that they were legally required to fund the treatment that we need abroad. We’ll see what happens.</p>
<p>So I’ll still have to raise the money by myself. This MP seems willing to fight for his constituent. I’m not his constituent so I don’t know if he’ll be able to help me but we’ll wait to see if he replies to our email to see if he can help at all. Meanwhile, we keep fundraising (at <a href="https://gofundme.com/savejenny" target="_blank" rel="noopener">gofundme.com/savejenny</a>)</p>
<p>To see the question in parliament and the Prime Minister’s answer, go to time stamp 13:15 of the following YouTube link: <a href="https://www.youtube.com/live/aJ-x3Qy1WhA?si=MFiNmC7qm-fwU-Zm" target="_blank" rel="noopener">https://www.youtube.com/live/aJ-x3Qy1WhA?si=MFiNmC7qm-fwU-Zm</a></p>
<p>Thank you to Simon Meadows for bringing these PMQs to my attention. We would have completely missed it otherwise! </p>
<p>Here is the video that explains what is wrong with my neck, details of the surgery that I need, my everyday bed-bound life as I fight to stay alive, and why it is getting more urgent that I get this neurosurgery as soon as possible:<br />
<a href="https://www.jkrowbory.co.uk/2025/09/a-question-raised-in-parliament-about-eds-patients-with-neck-instabilities-who-have-to-crowdfund-for-treatment-overseas-because-theres-no-help-available-on-the-nhs/"><img decoding="async" src="https://www.jkrowbory.co.uk/wp-content/plugins/wp-youtube-lyte/lyteCache.php?origThumbUrl=%2F%2Fi.ytimg.com%2Fvi%2F4XbNiqMCMns%2Fmaxresdefault.jpg" alt="YouTube Video"></a><br /><br /></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2025/09/a-question-raised-in-parliament-about-eds-patients-with-neck-instabilities-who-have-to-crowdfund-for-treatment-overseas-because-theres-no-help-available-on-the-nhs/">A question raised in parliament about EDS patients with neck instabilities who have to crowdfund for treatment overseas because there’s no help available on the NHS</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
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		<title>A Summer Night’s Dream of Poetry with Jenny Rowbory</title>
		<link>https://www.jkrowbory.co.uk/2025/07/a-summer-nights-dream-of-poetry/</link>
		
		<dc:creator><![CDATA[Jenny Rowbory]]></dc:creator>
		<pubDate>Fri, 18 Jul 2025 02:51:47 +0000</pubDate>
				<category><![CDATA[Fundraising]]></category>
		<category><![CDATA[News]]></category>
		<category><![CDATA[Poetry]]></category>
		<guid isPermaLink="false">https://www.jkrowbory.co.uk/?p=3898</guid>

					<description><![CDATA[<p>Jenny invites you to join her for ‘A Summer Night’s Dream of Poetry’. She has made a beautiful 14 minute video of her performing her favourite poetry by other poets, and a final poem of ... </p>
<p class="read-more-container"><a title="A Summer Night’s Dream of Poetry with Jenny Rowbory" class="read-more button" href="https://www.jkrowbory.co.uk/2025/07/a-summer-nights-dream-of-poetry/#more-3898" aria-label="Read more about A Summer Night’s Dream of Poetry with Jenny Rowbory">Read more</a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2025/07/a-summer-nights-dream-of-poetry/">A Summer Night’s Dream of Poetry with Jenny Rowbory</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
]]></description>
										<content:encoded><![CDATA[<p>Jenny invites you to join her for ‘A Summer Night’s Dream of Poetry’. She has made a beautiful 14 minute video of her performing her favourite poetry by other poets, and a final poem of her own. </p>
<p>We ask that you donate the price of a “ticket” on her fundraising page here: <a href="https://gofundme.com/savejenny" target="_blank" rel="noopener">https://gofundme.com/savejenny</a> &#8211; simply donate however much you think the performance is worth after viewing it. Even if you don’t usually like poetry, Jenny’s performances will change your mind! She’s truly talented. Hopefully the video will touch you; it will make you laugh and make you cry. </p>
<p>It has also been a labour of love to make the video and, given the state that Jenny is in, she has pushed herself further than she should, at great physical cost, in order to provide a stunning experience for you all, to raise money. </p>
<p>With some of the poems, Jenny performs them straight to camera; with other poems, she has used video footage that her late father filmed when he was on his walks, and she has done a voice-over of those poems.</p>
<a href="https://www.jkrowbory.co.uk/2025/07/a-summer-nights-dream-of-poetry/"><img decoding="async" src="https://www.jkrowbory.co.uk/wp-content/plugins/wp-youtube-lyte/lyteCache.php?origThumbUrl=%2F%2Fi.ytimg.com%2Fvi%2FXG0watkxXSM%2Fmaxresdefault.jpg" alt="YouTube Video"></a><br /><br /></p>
<p>We thought it would be lovely if we all pressed ‘play’ on the video at the same time, so that we are all watching the video at the same time. We invite you to start watching at 7pm on Friday 18th July 2025 (BST &#8211; British Summer Time). It would be wonderful if you could leave a comment on the YouTube video to let us know that you are there, and to leave a comment on the video saying which of the poems performed is your favourite &#8211; Jenny especially would like to know this.</p>
<p>The video is unlisted on YouTube, which means that you’ll be getting your money’s worth because the general public won’t be able to see it, only people who have been given the following link:<b> <a href="https://youtu.be/XG0watkxXSM" target="_blank" rel="noopener">https://youtu.be/XG0watkxXSM</a> (this is where you can watch the video)</b>.<br />
We trust you all to be honest and donate the price of the “ticket” if you watch the video. Please do share the link with others, explaining about giving a donation if they watch the video. </p>
<p>The video will be available both before and after 7pm on 18th July, in case you’re not available at that specific time to watch it together as a community, supporting Jenny’s fundraising effort.</p>
<p>Thank you so much for all your support and kindness. Jenny hopes that ‘A Summer Night’s Dream of Poetry’ will be a balm for your soul. </p>
<p>The running order of poems in the programme:</p>
<p>• Jabberwocky by Lewis Carroll<br />
• I Know Why The Caged Bird Sings by Maya Angelou<br />
• An extract from ‘i carry your heart with me’ by e.e. cummings<br />
• ‘Tis a fearful thing by Yehuda HaLevi<br />
• A Better Resurrection by Christina Rossetti<br />
• Why English is so Hard by Unknown<br />
• The Way Through The Woods by Rudyard Kipling<br />
• Invictus by W.E. Henley<br />
• All That Is Gold Does Not Glitter by J.R.R. Tolkien<br />
• Sonnet 29 by William Shakespeare<br />
• For Right Now by Jenny Rowbory </p>
<p>Here is the video that explains what is wrong with Jenny’s neck, details of the surgery she needs, her bed-bound life, and why it is getting more urgent that she gets this neurosurgery as soon as possible:<br />
<a href="https://www.jkrowbory.co.uk/2025/07/a-summer-nights-dream-of-poetry/"><img decoding="async" src="https://www.jkrowbory.co.uk/wp-content/plugins/wp-youtube-lyte/lyteCache.php?origThumbUrl=%2F%2Fi.ytimg.com%2Fvi%2F4XbNiqMCMns%2Fmaxresdefault.jpg" alt="YouTube Video"></a><br /><br /></p>
<p>A book of Jenny’s collected poems ‘We Are The Winter People’, which is also raising money for her surgery: <a href="https://mybook.to/WinterPeople" target="_blank" rel="noopener">https://mybook.to/WinterPeople</a></p>
<p><a href="https://www.jkrowbory.co.uk/wp-content/uploads/2025/07/7445CF4B-EFA0-4246-A643-9E229CB9ABEC.jpeg"><img loading="lazy" decoding="async" src="https://www.jkrowbory.co.uk/wp-content/uploads/2025/07/7445CF4B-EFA0-4246-A643-9E229CB9ABEC-205x300.jpeg" alt="" width="205" height="300" class="aligncenter size-medium wp-image-3903" srcset="https://www.jkrowbory.co.uk/wp-content/uploads/2025/07/7445CF4B-EFA0-4246-A643-9E229CB9ABEC-205x300.jpeg 205w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/07/7445CF4B-EFA0-4246-A643-9E229CB9ABEC-700x1024.jpeg 700w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/07/7445CF4B-EFA0-4246-A643-9E229CB9ABEC-768x1124.jpeg 768w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/07/7445CF4B-EFA0-4246-A643-9E229CB9ABEC-1049x1536.jpeg 1049w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/07/7445CF4B-EFA0-4246-A643-9E229CB9ABEC.jpeg 1093w" sizes="auto, (max-width: 205px) 100vw, 205px" /></a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2025/07/a-summer-nights-dream-of-poetry/">A Summer Night’s Dream of Poetry with Jenny Rowbory</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
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		<title>Summer Reading Challenge</title>
		<link>https://www.jkrowbory.co.uk/2025/06/summer-reading-challenge/</link>
		
		<dc:creator><![CDATA[Jenny Rowbory]]></dc:creator>
		<pubDate>Sun, 29 Jun 2025 23:06:53 +0000</pubDate>
				<category><![CDATA[Books]]></category>
		<category><![CDATA[Fundraising]]></category>
		<category><![CDATA[News]]></category>
		<guid isPermaLink="false">https://www.jkrowbory.co.uk/?p=3880</guid>

					<description><![CDATA[<p>&#160; Summer Reading Challenge: try to read (or listen to via audiobook) as many books as possible over the summer and get friends/family to sponsor you per book that you manage to read, all in ... </p>
<p class="read-more-container"><a title="Summer Reading Challenge" class="read-more button" href="https://www.jkrowbory.co.uk/2025/06/summer-reading-challenge/#more-3880" aria-label="Read more about Summer Reading Challenge">Read more</a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2025/06/summer-reading-challenge/">Summer Reading Challenge</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
]]></description>
										<content:encoded><![CDATA[<p><a href="https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1669.jpeg"><img loading="lazy" decoding="async" src="https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1669-300x200.jpeg" alt="" width="300" height="200" class="aligncenter size-medium wp-image-3892" srcset="https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1669-300x200.jpeg 300w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1669-1024x683.jpeg 1024w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1669-768x512.jpeg 768w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1669-1536x1024.jpeg 1536w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1669.jpeg 1600w" sizes="auto, (max-width: 300px) 100vw, 300px" /></a><br />
&nbsp;</p>
<p>Summer Reading Challenge:<br />
try to read (or listen to via audiobook) as many books as possible over the summer and get friends/family to sponsor you per book that you manage to read, all in order to raise money for my urgent neurosurgery. So for every book that you read over the summer, others can sponsor you a certain amount of their choosing, or an overall total amount to sponsor you. They can either donate straight onto the fundraising page (<a href="https://gofundme.com/savejenny" target="_blank" rel="noopener">https://gofundme.com/savejenny</a> or you can print out the Summer Reading Challenge Sponsor Form below for them to fill out, and then you collect the money from them when you’ve completed the challenge, and donate it.</p>
<p>Book recommendation videos that I’ve made for you to help you out as you embark on your Summer Reading Challenge:</p>
<p>• My 14 favourite non-fiction books of all time: <a href="https://youtu.be/dmWVvyfu0Qs" target="_blank" rel="noopener">https://youtu.be/dmWVvyfu0Qs</a></p>
<p>• My top 25 book series, all in 30 seconds: <a href="https://youtube.com/shorts/htSOxZx1Gig" target="_blank" rel="noopener">https://youtube.com/shorts/htSOxZx1Gig</a> (genres: fantasy, dystopian, science fiction)</p>
<p>• 5 children’s books that are so good that you’ll genuinely enjoy them as an adult: <a href="https://youtube.com/shorts/lWfI1cyERD0" target="_blank" rel="noopener">https://youtube.com/shorts/lWfI1cyERD0</a></p>
<p>• If you like Pride and Prejudice, I think you might enjoy this book: <a href="https://youtube.com/shorts/dRO1cL4PL78" target="_blank" rel="noopener">https://youtube.com/shorts/dRO1cL4PL78</a></p>
<p>• A recent discovery of a phenomenal fantasy book: <a href="https://youtu.be/jnrvrfX2FO4" target="_blank" rel="noopener">https://youtu.be/jnrvrfX2FO4</a></p>
<p>• Review of an incredible sci-fi story, as well as my “Story Time” on my science background: <a href="https://youtu.be/WGKsbx8u0OU" target="_blank" rel="noopener">https://youtu.be/WGKsbx8u0OU</a></p>
<p>Links to my re-edited and significantly shortened YouTube video explaining why I’m fundraising and what for:</p>
<p>• explaining the situation with my neck, how to fix it, and what I go through every day: <a href="https://youtu.be/4XbNiqMCMns" target="_blank" rel="noopener">https://youtu.be/4XbNiqMCMns</a></p>
<p>You can follow me on TikTok, Instagram or YouTube for more book reviews and bookish content for extra ideas for your Summer Reading Challenge, at these links:</p>
<p>TikTok:<br />
<a href="https://www.tiktok.com/@jennyrowbory" target="_blank" rel="noopener">https://www.tiktok.com/@jennyrowbory</a></p>
<p>Instagram:<br />
<a href="https://www.instagram.com/jennyrowbory" target="_blank" rel="noopener">https://www.instagram.com/jennyrowbory</a></p>
<p>YouTube:<br />
<a href="https://youtube.com/@jenny.rowbory" target="_blank" rel="noopener">https://youtube.com/@jenny.rowbory</a></p>
<p><strong>Summer Reading Challenge Sponsor Form:</strong></p>
<p><a href="https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1628.jpeg"><img loading="lazy" decoding="async" src="https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1628-213x300.jpeg" alt="" width="213" height="300" class="aligncenter size-medium wp-image-3881" srcset="https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1628-213x300.jpeg 213w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1628-726x1024.jpeg 726w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1628-768x1084.jpeg 768w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1628-1089x1536.jpeg 1089w, https://www.jkrowbory.co.uk/wp-content/uploads/2025/06/IMG_1628.jpeg 1134w" sizes="auto, (max-width: 213px) 100vw, 213px" /></a></p>
<p>&nbsp;<br />
My fundraising page: <a href="https://gofundme.com/savejenny" target="_blank" rel="noopener">https://gofundme.com/savejenny</a></p>
<p>&lt;p&gt;The post <a rel="nofollow" href="https://www.jkrowbory.co.uk/2025/06/summer-reading-challenge/">Summer Reading Challenge</a> first appeared on <a rel="nofollow" href="https://www.jkrowbory.co.uk">Jenny Rowbory</a>.&lt;/p&gt;</p>
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