Catch Up with the #SaveJenny Evening of Entertainment
If you want to catch up with the full evening of entertainment, you can watch it in its glorious entirety in the video above. Settle down for a two and a half hour viewing of …
Illness
#SaveJenny: An evening of entertainment to raise funds to save Jenny’s life
Join us live on YouTube at 6pm GMT, Sunday 29th November for an evening of fun: sketches, music, poems, games, stories and more! With a host of big names and stars. It can be watched …
My Audiobook Adventures
I have deteriorated further. My neck keeps subluxing and breaking away further in a particular direction and my skull rolls about independently on the pillow so I can’t ever keep it still or safe. It’s …
April 2020 Health Update and Other News (I’ve been quoted in the New Statesman!)
As you would have gathered from the post-surgery update (you can read it here), I desperately need another operation to fix what happened in the last one and being fused into the wrong position without …
Post-surgery update on Jenny
We are in a state of shock and devastation. Jenny immediately knew after the operation (an occipitocervical fusion and also a posterior fossa decompression) that something was very wrong but wasn’t able to communicate it …
Health Update October 2019
I have no wit, no words, no tears; My heart within me like a stone Is numb’d too much for hopes or fears; Look right, look left, I dwell alone ~ Christina Rossetti My …
Best and Worst of 2018
These are my best and worst books, films, television programmes, sport and videos of 2018
Update on October’s hospital visit and current health
I was trying to wait until we had more definite information and a firm plan of action until I posted an update but so many of you have been asking how I am (thank …
Update on Jenny’s hospital stay
Jenny is alive and back home! She has physically deteriorated and is in a bad way from the long ambulance journeys and the noise of being in a hospital and having doctors and nurses constantly …
You (yes, you) need to read what I have to say about the plastic straw ban
Human beings need five things to survive: water, food, oxygen, sleep and also sufficient warmth so that they don’t get hypothermia. For many people with disabilities, the total removal of plastic straws would …