Twelve years ago today, I became ill. To mark the day, I thought of a fun idea that will hopefully also do a lot of good. I have devised a 100 question ditloid quiz to raise money for two charities that respectively fund research into the two illnesses that I have (severe Myalgic Encephalomyelitis […] The following is my experience of watching the 2016 Olympics and includes all of my favourite bits. • SWIMMING I’ve loved the swimming commentators Andy Jameson and Adrian Moorhouse for ages but they really outdid themselves this Olympics. Of course they’re very knowledgable and they commentate the races excellently but what makes them special is […] In general, there is a paucity of fictional female characters compared to the number of male ones and there are even fewer that are really great, three-dimensional characters. I’ve decided to celebrate the ones that do exist. Here’s hoping for more characters as interesting as my favourite ones below. I have divided them into […] I hope that these words may help you too. […] 
I’ve lived within the four sides of my single bed for 11 years. I haven’t seen outside apart from the times I’ve been in an ambulance. I’m unable to sit up so when nature calls, I have to slide onto the commode beside my bed whilst doubled over so that I don’t pass out. […] Jenny arrived back home from hospital at 9pm yesterday. She is a lot worse. Her heart was too unstable and her condition too fragile in the first place for her to be moved from her bed onto a stretcher, let alone survive a 6 hour ambulance journey to a hospital in London, being in the […] 
In early September I had a mini-stroke (thankfully there were no lasting effects or damage from this; I was lucky), followed by the worst 3 weeks of my life, in which I had 10 severe uterine haemorrhages and heavy bleeding in-between the haemorrhages. I am almost passing out all the time from hypovolemia and […] Books were read to me before I can even remember, before my first memories of life. I wonder what impact they had on me and on my growing brain. Were the stories being woven into my subconscious? It’s bizarre that even though my memories from that age are gone, when I see the front […] I got my genetic test results back. They show that I have mutation of the gene COL3A1. This means that Dr. Saggar (Senior Consultant in Clinical Genetics at St. George’s NHS Trust and Senior Lecturer in Medicine) has officially diagnosed me with Vascular Ehlers-Danlos Syndrome Type IV (vEDS is the abbreviation), a rare genetic disease. […] 
Today I am 29 on the 29th! The only time in my life when the age I turn on my birthday is the same number as the date of the month on which my birthday falls. Numerically satisfying, if a tad arbitrary. Anyway, these are my ten greatest wishes on this birthday. I hope a […] |
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