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Update on October’s hospital visit and current health

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  I was trying to wait until we had more definite information and a firm plan of action until I posted an update but so many of you have been asking how I am (thank you for caring!) that an update is needed.

In case you don’t follow my twitter or facebook feeds, […]

Update on Jenny’s hospital stay

Jenny is alive and back home!

She has physically deteriorated and is in a bad way from the long ambulance journeys and the noise of being in a hospital and having doctors and nurses constantly coming into her room in hospital, which was always going to make her worse. We knew that before we went […]

You (yes, you) need to read what I have to say about the plastic straw ban

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Human beings need five things to survive: water, food, oxygen, sleep and also sufficient warmth so that they don’t get hypothermia.

For many people with disabilities, the total removal of plastic straws would take away one, sometimes two, of these five essentials to stay alive. Before plastic straws were invented, a lot of […]

Let me tell you a bit about my parents…

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Let me tell you a bit about my parents. They have worked relentlessly hard to care for me so incredibly well for over 13 years since I became seriously ill during my first term at university. They have given up everything for me but frequently tell me that looking after me is their […]

The launch of my ‘Five by Five’ challenge and how I managed to do it

The past four months have been brutal. On top of all the ambulance journeys, as I explained in my previous blog post, I can now only lie horizontal with my head touching my pillow for two out of the twenty-four hours in a day because the blood flow to my head gets so cut […]

A lot has happened

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Last May, I injured my head. The whole of the right half of my head became numb and if any of the right half of my head was touching anything, including my pillow, then more blood would be cut off and the right half of my head would become even more numb. This rendered […]

Best and Worst of 2017: my year

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2017 was devastating for me both physically and emotionally but the following films, television, articles (and more) helped keep me going and provided glimpses of light, interest and joy (even though, like everything, they were tainted by acute physical suffering). I hope they will bring you happiness too. I added items to the list […]

When you beckon lightning and invite it in for tea

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By February 2007, I had been receiving daily Nexavir injections (an antiviral) for six months and I was actually starting to see small improvements in my health for the first time in over two years of being acutely ill. But friends and relatives kept sending me newspaper cuttings of articles about the Lightning Process […]

Confronting my own internalised ableism

Lots of people, including me, write of how active we were before our illness, of how many miles we ran or how much sport we played. It underlines that we are not the usual sort of person who gets ill, which of course is a disgusting fallacy (there is no ‘sort’ of person who becomes […]